Praise forUp, Not Down Syndrome
“Great read! Here is a ten-year walk down the path of a scary Trisomy birth that leads us to the ‘pure, unadulterated joy these children can bring.’”
— John Wells, Board Member of L’Arche London, Ontario; Husband and Father
“This story turns broken into whole, tragedy into joy, and optimism into hope. Nancy is an inspiration for all parents struggling with a child with challenges.”
— Debby Elnatan, Inventor of Upsee, a children’s walking device, and Mom
“Nancy, it’s a wonder when someone does what you do, inUp, Not Down Syndrome—namely, puts a searchlight into the nooks and crannies of one’s own experience to shine the light of day on our shared humanity. And you offer many little ‘epiphanies’ along the way, beginning on the first page of Chapter 1, where you write, ‘But we cannot know life’s later lessons in the moment. We can only be where we are.’ Thank you for this.”
— Brenda Dixon-Gottschild, Ph.D., Author, Lecturer, Consultant, Teacher, Performer, and Prof. Emerita, Dance Studies, Temple University
“Nancy’s story shines a powerful light on the murky waters of parenting and family dynamics. A required read for any parent navigating the occasionally cloudy and sometimes dark waters of parenthood and family. You will laugh, cry, and love. Enjoy the ride. I’m humbled by this love story.”
— Beth Nordman, Giving Bean Coffee
“Nancy Schwartz’sUp, Not DownSyndrome reverberates with such love and care, not just for her son Alex, but for all the friends, family, medical professionals, educators, support staff, physical therapists, and numerous others with whom she has created community. This book shows how a child and a family can impact the world in a powerful, hope-filled way. I felt privileged to read this story.”
— Elizabeth Castiglione, Artist and Mother
“Having a child with Down syndrome has enriched my life in the best possible way by introducing me to an amazing community filled with parents passionate about helping their children grow and learn to the best of their abilities. Through CHOP Buddy Walk, I have come to know Nancy and her son, Alex. Nancy’s resolve to ensure that Alex and his brothers thrive has influenced me to reach further for my own son and his siblings and become a Down syndrome advocate. I’m so thankful that Nancy put pen to paper to